My name is Katy - Lift us up

My name is Katy. You would call me Flakey.

I was a manicurist for 20 years. I loved my work, I was dedicated to my customers. I felt good about the services I provided because; as well as, being a necessary treatment it helped them t o feel better about themselves. I enjoyed taking care of their needs, and making them lookm and feel good. I managed to build a large clientele, I was booked solid with clients on a waiting list just to get an appointment with me. I was one of the best in town. I started to get drowsy while I was doing my work. Falling asleep while i was holding their hands. Trying evertything to stay awake. Still nodding off, and going into REM sleep with my eyes open, and continuing to speak, but not making any sense. Waking up when they would laugh at what I had just said,then having to ask what I had said, or done. I would have to get up, walk around the block or go get a coffee, or even go take a nap during their service. Then I would be late for my next appointment. I was often late for work because I couldn’t get it together in the morning. I began to lose my clients one by one. Eventually I didn’t have enough to keep me working. I decided to go to work at a job I can be physically active. Sitting down while I work is no longer a possibility. I’m a server at a restaurant now. I still love taking care of people, I just do it differently now. I can stay awake while I’m walking around. I have to sleep in my car before I go home though after I work, or I will fight sleep all the way home.
I want people to know that just because I am sleepy does not mean I don’t care. I do.

Katy lives with narcolepsy. The symptoms of this incurable disorder include: falling asleep unexpectedly, extreme sleepiness throughout the day, disrupted sleep during the night, sudden loss of muscle control and even hallucinations.

But the impact of narcolepsy in daily life reaches far beyond these symptoms.

When narcolepsy lets us down, understanding lifts us up.

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