The world was my oyster and i knew exactly what i wanted to do with it. i studied hard but at 14 it become more difficult, i couldn’t concentrate on my school work and kept falling asleep in class, everyone told me i need to go to bed earlier even though i already was but at 15 i was diagnosed with narcolepsy and cataplexy and i felt like my world fell apart things i wanted to do now were not possible and things that were possible were very hard to achieve. i’m now 28 i’ve learnt to handle a lot that comes with the illness such as having a poor memory or the falls and injury’s i’ve suffered. the hardest part of living with narcolepsy is how other people judge me, saying i should go to bed earlier, or think i’m drunk or on drugs if i have a sleep attack in public, i wish people understood my daily struggle.
Kirsty lives with narcolepsy. The symptoms of this incurable disorder include: falling asleep unexpectedly, extreme sleepiness throughout the day, disrupted sleep during the night, sudden loss of muscle control and even hallucinations.
But the impact of narcolepsy in daily life reaches far beyond these symptoms.