What Mo’s story shows is the fact that a cataplexy attack may be as extreme as a full body collapse, but it can also be less severe such as a slack jaw. Not everyone who has narcolepsy experiences cataplexy. Cataplexy is an abrupt loss of muscle tone or strength, which can be triggered by a strong emotion – such as excitement, fear or joy - that results in an inability to move and always occurs during wakefulness. Other symptoms of this incurable disorder include falling asleep unexpectedly, extreme sleepiness throughout the day, disrupted sleep during the night, sudden loss of muscle control, amnesia and even hallucinations.
To help people better understand what it’s like living with narcolepsy It is important that we spread our message across the world.
So watch, like and share our stories and support the #LiftUsUp campaign.
Getting and staying involved is the only way to personally affect the future of narcolepsy. No one is able to do it all. It takes a community! The only way to achieve our mutual goals is for every person affected by narcolepsy to be as involved as their time, talents and resources allow. We’re confident that you will identify at least one – and probably several – ways of getting and staying involved in our Narcolepsy Network.
Having the support of other people with narcolepsy is an important part of living well with narcolepsy. There’s a network of narcolepsy support groups all over the U.S. These groups provide an opportunity to share information, encouragement or just a laugh with others who truly understand your experiences with Narcolepsy.