What Peter’s story shows is the fact that people with narcolepsy have excessive daytime sleepiness, this is often the most obvious symptom. Excessive daytime sleepiness is characterized by persistent sleepiness, regardless of how much sleep an individual gets at night. However, sleepiness in narcolepsy is more like a “sleep attack”, where an overwhelming sense of sleepiness comes on quickly. Misdiagnosis is common, in a recent study, 60% of patients were misdiagnosed. The most common misdiagnosis was depression. Other symptoms of this incurable disorder include falling asleep unexpectedly, extreme sleepiness throughout the day, disrupted sleep during the night, sudden loss of muscle control, amnesia and even hallucinations.
To help people better understand what it’s like living with narcolepsy It is important that we spread our message across the world.
So watch, like and share our stories and support the #LiftUsUp campaign.
Getting and staying involved is the only way to personally affect the future of narcolepsy. No one is able to do it all. It takes a community! The only way to achieve our mutual goals is for every person affected by narcolepsy to be as involved as their time, talents and resources allow. We’re confident that you will identify at least one – and probably several – ways of getting and staying involved in our Narcolepsy Network.
Having the support of other people with narcolepsy is an important part of living well with narcolepsy. There’s a network of narcolepsy support groups all over the U.S. These groups provide an opportunity to share information, encouragement or just a laugh with others who truly understand your experiences with Narcolepsy.